Samuel Arnold

Lecturer

Sam is a lecturer with the Department of Developmental Disability Neuropsychiatry (3DN), University of New South Wales. He was recently focused on the Australian Longitudinal Study of Autism in Adulthood (ALSAA), and is now leading a study developing the construct of contribution for application to outcome measurement, funded by the Endeavour Foundation Disability Research Fund 2021 Research Award.

Sam is a registered psychologist with a background in supporting adults with disability in community settings. He formerly worked as a Research Fellow at the Centre for Disability Studies (CDS), University of Sydney and previously provided counselling and clinical services at the NSW Developmental Disability Health Unit (DDHU) and the Northern Sydney Intellectual Disability Health Team (NIDH). He completed his PhD in 2016 on the “Measurement and Conceptualisation of Support Needs”.

Please make contact if interested in collaboration or scholarship relating to autism or intellectual disability research.

publications

Journal articles
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Muniandy M; Richdale AL; Arnold SRC; Trollor JN; Lawson LP, 2021, 'Factor structure and psychometric properties of the Brief COPE in autistic older adolescents and adults', Research in Autism Spectrum Disorders, vol. 84, pp. 101764 - 101764, http://dx.doi.org/10.1016/j.rasd.2021.101764
2021
Higgins JM; Arnold SRC; Weise J; Pellicano E; Trollor JN, 2021, 'Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnout', Autism, vol. 25, pp. 2356 - 2369, http://dx.doi.org/10.1177/13623613211019858
2021
Wilson NJ; Stevens A; Srasuebkul P; Kersten M; Lin Z; Trollor JN; Arnold SRC, 2021, 'Exploring the relationship between community mobility and quality of life, employment and completing further education for autistic adults', Journal of Transport and Health, vol. 22, pp. 101117 - 101117, http://dx.doi.org/10.1016/j.jth.2021.101117
2021
Sonido MT; Hwang YI; Srasuebkul P; Trollor JN; Arnold SRC, 2021, 'Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum', Journal of Autism and Developmental Disorders, http://dx.doi.org/10.1007/s10803-021-05178-3
2021
Huang Y; Arnold SRC; Foley KR; Trollor JN, 2021, 'Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia', Journal of Autism and Developmental Disorders, http://dx.doi.org/10.1007/s10803-021-05169-4
2021
Muniandy M; Richdale AL; Arnold SRC; Trollor JN; Lawson LP, 2021, 'Inter-relationships between trait resilience, coping strategies, and mental health outcomes in autistic adults', Autism Research, vol. 14, pp. 2156 - 2168, http://dx.doi.org/10.1002/aur.2564
2021
Harvery M; Froude EH; Foley KR; Trollor JN; Arnold SRC, 2021, 'Employment profiles of autistic adults in Australia', Autism Research, vol. 14, pp. 2061 - 2077, http://dx.doi.org/10.1002/aur.2588
2021
Huang Y; Arnold SRC; Foley KR; Lawson LP; Richdale AL; Trollor JN, 2021, 'Factors associated with age at autism diagnosis in a community sample of Australian adults', Autism Research, http://dx.doi.org/10.1002/aur.2610
2021
Gibbs V; Hudson J; Hwang YI; Arnold S; Trollor J; Pellicano E, 2021, 'Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates', Research in Autism Spectrum Disorders, vol. 89, pp. 101866 - 101866, http://dx.doi.org/10.1016/j.rasd.2021.101866
2021
Lilley R; Lawson W; Hall G; Mahony J; Clapham H; Heyworth M; Arnold SRC; Trollor JN; Yudell M; Pellicano E, 2021, '‘A way to be me’: Autobiographical reflections of autistic adults diagnosed in mid-to-late adulthood', Autism, http://dx.doi.org/10.1177/13623613211050694
2021
Arnold SRC; Uljarević M; Hwang YI; Richdale AL; Trollor JN; Lawson LP, 2020, 'Brief Report: Psychometric Properties of the Patient Health Questionaire-9 (PHQ-9) in Autistic Adults', Journal of Autism and Developmental Disorders, vol. 50, pp. 2217 - 2225, http://dx.doi.org/10.1007/s10803-019-03947-9
2020
Pellicano E; Lawson W; Hall G; Mahony J; Lilley R; Davis C; Arnold S; Trollor J; Yudell M, 2020, 'Documenting the untold histories of late-diagnosed autistic adults: a qualitative study protocol using oral history methodology', BMJ open, vol. 10, pp. e037968, http://dx.doi.org/10.1136/bmjopen-2020-037968
2020
Arnold SRC; Huang Y; Hwang YIJ; Richdale AL; Trollor JN; Lawson LP, 2020, '“The Single Most Important Thing That Has Happened to Me in My Life”: Development of the Impact of Diagnosis Scale—Preliminary Revision', Autism in Adulthood, vol. 2, pp. 34 - 41, http://dx.doi.org/10.1089/aut.2019.0059
2020
Jovevska S; Richdale AL; Lawson LP; Uljarević M; Arnold SRC; Trollor JN, 2020, 'Sleep Quality in Autism from Adolescence to Old Age', Autism in Adulthood, vol. 2, pp. 152 - 162, http://dx.doi.org/10.1089/aut.2019.0034
2020
Sonido MT; Hwang YI; Trollor JN; Arnold SRC, 2020, 'The Mental Well-Being of Informal Carers of Adults on the Autism Spectrum: a Systematic Review', Review Journal of Autism and Developmental Disorders, vol. 7, pp. 63 - 77, http://dx.doi.org/10.1007/s40489-019-00177-8
2020
Lawson LP; Richdale AL; Haschek A; Flower RL; Vartuli J; Arnold SRC; Trollor JN, 2020, 'Cross-sectional and longitudinal predictors of quality of life in autistic individuals from adolescence to adulthood: The role of mental health and sleep quality', Autism, vol. 24, pp. 954 - 967, http://dx.doi.org/10.1177/1362361320908107
2020
Hwang YI; Arnold S; Srasuebkul P; Trollor J, 2020, 'Understanding anxiety in adults on the autism spectrum: An investigation of its relationship with intolerance of uncertainty, sensory sensitivities and repetitive behaviours', Autism, vol. 24, pp. 411 - 422, http://dx.doi.org/10.1177/1362361319868907
2020
Sonido M; Arnold S; Higgins J; Hwang YIJ, 2020, 'Autism in Later Life: What Is Known and What Is Needed?', Current Developmental Disorders Reports, vol. 7, pp. 69 - 77, http://dx.doi.org/10.1007/s40474-020-00192-z
2020
Huang Y; Arnold SRC; Foley KR; Trollor JN, 2020, 'Diagnosis of autism in adulthood: A scoping review', Autism, vol. 24, pp. 1311 - 1327, http://dx.doi.org/10.1177/1362361320903128
2020
Arnold SRC; Higgins JM; Trollor JN, 2020, 'Health services for Australian autistic adults: Commentary on “The experiences, views, and needs of health professionals who provide care to adults on the autism spectrum” (Urbanowicz, Parkin, van Dooren, Girdler, Ciccarelli, & Lennox, 2020)', Research and Practice in Intellectual and Developmental Disabilities, vol. 7, pp. 193 - 198, http://dx.doi.org/10.1080/23297018.2020.1753566
2020
Hwang YI; Arnold S; Trollor J; Uljarević M, 2020, 'Factor structure and psychometric properties of the brief Connor–Davidson Resilience Scale for adults on the autism spectrum', Autism, vol. 24, pp. 1572 - 1577, http://dx.doi.org/10.1177/1362361320908095
2020
Hwang YI; Srasuebkul P; Foley KR; Arnold S; Trollor JN, 2019, 'Mortality and cause of death of Australians on the autism spectrum', Autism Research, vol. 12, pp. 806 - 815, http://dx.doi.org/10.1002/aur.2086
2019
Arnold S; Foley KR; Hwang YI; Richdale AL; Uljarevic M; Lawson LP; Cai RY; Falkmer T; Falkmer M; Lennox NG; Urbanowicz A; Trollor J, 2019, 'Cohort profile: The Australian Longitudinal Study of Adults with Autism (ALSAA)', BMJ Open, vol. 9, pp. e030798, http://dx.doi.org/10.1136/bmjopen-2019-030798
2019
Ee D; Hwang YIJ; Reppermund S; Srasuebkul P; Trollor JN; Foley K-R; Arnold SRC, 2019, 'Loneliness in Adults on the Autism Spectrum', Autism in Adulthood, vol. 1, pp. 182 - 193, http://dx.doi.org/10.1089/aut.2018.0038
2019
Cvejic RC; Arnold SRC; Foley K-R; Trollor JN, 2018, 'Neuropsychiatric profile and psychotropic medication use in adults with autism spectrum disorder: results from the Australian Longitudinal Study of Adults with Autism', BJPsych Open, vol. 4, pp. 461–466 - 461–466, http://dx.doi.org/10.1192/bjo.2018.64
2018
Arnold SRC; Riches VC; Stancliffe RJ, 2015, 'Does a Measure of Support Needs Predict Funding Need Better Than a Measure of Adaptive and Maladaptive Behavior?', American journal on intellectual and developmental disabilities, vol. 120, pp. 375 - 394, http://dx.doi.org/10.1352/1944-7558-120.5.375
2015
Arnold SRC; Riches VC; Stancliffe RJ, 2014, 'I-CAN: The classification and prediction of support needs', Journal of Applied Research in Intellectual Disabilities, vol. 27, pp. 97 - 111, http://dx.doi.org/10.1111/jar.12055
2014
Chan J; Arnold S; Webber L; Riches V; Parmenter T; Stancliffe R, 2012, 'Is it time to drop the term ‘challenging behaviour’?', Learning Disability Practice, vol. 15, pp. 36 - 38, http://dx.doi.org/10.7748/ldp2012.06.15.5.36.c9131
2012
Arnold SRC; Riches VC; Stancliffe RJ, 2011, 'Intelligence is as intelligence does: Can additional support needs replace disability?', Journal of Intellectual and Developmental Disability, vol. 36, pp. 258 - 262, http://dx.doi.org/10.3109/13668250.2011.617732
2011
Arnold SRC; Riches VC; Parmenter TR; Stancliffe RJ, 2009, 'The I-CAN: Using e-Health to get people the support they need', Electronic Journal of Health Informatics, vol. 4
2009
Conference Abstracts
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Durvasula S; Sun C; Arnold S; Stack R; Cameron I, 2019, 'IDENTIFYING FRAILTY IN AN INTELLECTUAL DISABILITY CLINIC POPULATION', in JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, WILEY, Vol. 63, pp. 803 - 803, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000474486303122&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2019
Eapen V; Arnold S; Harley D; Trollor J, 2019, 'AUTISM SPECTRUM DISORDER OVER THE LIFE COURSE: FROM DIAGNOSIS TO MANAGEMENT', in AUSTRALIAN AND NEW ZEALAND JOURNAL OF PSYCHIATRY, SAGE PUBLICATIONS LTD, Vol. 53, pp. 41 - 41, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000466139700096&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2019
Arnold S, 2019, ''THE SINGLE MOST IMPORTANT THING THAT HAS HAPPENED TO ME IN MY LIFE': THE IMPACT OF RECEIVING AN AUTISM DIAGNOSIS IN ADULTHOOD', in AUSTRALIAN AND NEW ZEALAND JOURNAL OF PSYCHIATRY, SAGE PUBLICATIONS LTD, Vol. 53, pp. 42 - 43, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000466139700099&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2019
Sun C; Durvasula S; Arnold S; Cameron I, 2018, 'Using a Frailty Index in intellectual disability outpatient clinics', in AUSTRALASIAN JOURNAL ON AGEING, WILEY, Vol. 37, pp. 45 - 45, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000430282500085&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Book Chapters
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Trollor J; Hwang J, 2018, 'Autism Spectrum Disorders in Later Life', in Oxford Research Encyclopedia of Psychology, http://dx.doi.org/10.1093/acrefore/9780190236557.013.422
2018
Conference Papers
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Arnold S; Riches V; Stancliffe R, 2016, 'Advocating for needed supports using a standardised assessment of support needs', in JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, WILEY-BLACKWELL, pp. 630 - 630, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000383462000041&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
Durvasula S; Arnold S, 2016, 'Health-related quality of life and health status of people with intellectual disabilities attending a specialised health service', in JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, WILEY-BLACKWELL, pp. 660 - 660, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000383462000188&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
O'Brien PM; Arnold SRC; Espiner D; McCredie J; Robinson A; Doukakis EL; Gore CL, 2014, 'Using conversations to bring about change within the service system: a blueprint for redesign and transformation', in JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL, pp. 350 - 350, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000338992800364&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2014
Arnold SRC; Riches VC; Stancliffe RJ, 2014, 'Support needs predict funding need better than adaptive behaviour', in JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL, pp. 352 - 352, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000338992800378&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2014
O'Brien P; Riches V; Doukakis E; Murray R; Gore C; Arnold S; Knox M; Gadow F, 2013, 'On being person-centered', in JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL, pp. 157 - 158, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000320645500181&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2013
Knox M; Gadow F; O'Brien P; Riches V; Arnold S; Maher P, 2013, 'Can person-centredness bring about an organisational cultural shift?', in JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL, pp. 137 - 137, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000320645500117&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2013
Ruppert S; Richards D; Arnold S; Riches V; Parmenter T, 2010, 'Applying medicine 2.0 to the I-CAN: Managing the needs and rights of end users', in WEBIST 2010 - Proceedings of the 6th International Conference on Web Information Systems and Technology, pp. 144 - 149
2010
Arnold SRC; Riches VC; Stancliffe RJ, 2010, 'The I-CAN: Developing a bio-psycho-social understanding of support', in JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, WILEY-BLACKWELL PUBLISHING, INC, pp. 486 - 486, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000280980100488&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2010
Arnold SRC; Parmenter TR; Stancliffe RJ, 2009, 'The I-CAN workshop: Support, inclusion, and empowerment', in JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, JOHN WILEY & SONS INC, pp. 92 - 92, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000283017300015&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2009
Arnold SRC; Riches VC; Parmenter TR; Stancliffe RJ, 2009, 'The I-CAN: Support needed for inclusion and empowerment', in JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, JOHN WILEY & SONS INC, pp. 93 - 93, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000283017300016&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2009
Arnold SRC; Riches VC, 2008, 'The I-CAN - the right support empowers people', in JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY, INFORMA HEALTHCARE, pp. 278 - 278, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000258773800011&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2008
Reports
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O'Brien P; Pryor J; Arnold S; Harman T; Rivas M; Nicholl B, 2010, Innovative support models, housing design and home modification for people with acquired brain injury or spinal cord injury: A literature review and environmental scan., Centre for Disability Studies, Faculty of Medicine, University of Sydney., Sydney, Australia
2010